Thanks for your interest in the Our Fragile X World Registry. Our Fragile X World is a research registry for individuals who have fragile X or a family member with fragile X. If you agree to register, you give us permission to contact you up to 2 times a year to see if you are interested in participating in future research related to fragile X.
Before we continue, we need to get your permission to ask you questions about you and your family. We will use this information to determine which research studies are appropriate for you. We will start by giving you some information about these questions and what your participation involves.